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For information about Spina Bifida or Hydrocephalus, please take a look at these pages on the national Shine website:
It is easy to get confused about the various charities for spina bifida and hydrocephalus in this country but to put it simply, in England, Wales and Northern Ireland there is one national organisation (Shine) which covers the whole area and then there are a number of smaller, local, separate charities covering specific areas like Surrey. The reason this situation exists is largely historical and some local charities have closer links with national Shine than others.
The national charity, Shine, divides the area it covers into 4 regions and Shine Surrey comes under the Southern Region. For details of other local associations in this region please go directly to the web sites for other associations: Sussex, Kent, Isle of Wight, and Shine South (Hants, Dorset & Wilts).
If you go north of the border, Scotland is covered by the Scottish Spina Bifida Association (SSBA) www.ssba.org.uk
If you wish to find out about associations in other countries, a good start is the International Federation for Spina Bifida and Hydrocephalus,
Other useful links on the national Shine web site:
Hydrocephalus - notes for employers
- Advice & Support Shunt alert cards/Shunt Malfunction/Sport &
Exercise/Complementary Therapies/Benefits/Employment &
Disability/Support for Carers/Mental Wellbeing/Getting out and
Spina bifida - Advice for Parents New Parent Pack/What to expect? 0 -10 years/Vaccinations/
- Living with Spina Bifida Self Care/ Bladder & Bowel care/Latex Allergy/Foot Care
Advice/Sex/ Shine Health Hub/Benefits/Getting out & About/
Mental Wellbeing/Support for Carers/Employment &
Fundraising Use some of these ideas to raise money for Shine Surrey.
Useful links on the Surrey County Council web site:
Links to relevant London Borough council web sites: